Communities
The purpose of this page is to share details and links for various online support groups for people and carers of those with Type 1 Diabetes. If there are groups that are missing that you know of please send details and links to hello@type1diabetestips.com and details will be added to this page.
Abbott Freestyle Libre users
This group is for users of the Abbott Freestyle Libre flash glucose monitoring system, to discuss the system and share hints and tips. It is run by Libre users, not by Abbott.
https://www.facebook.com/groups/748445301888935/
CGM in the Cloud
CGM in the Cloud is a group for those to share their experiences with open source solutions to send data from the Dexcom G4 to the cloud so that it can be accessed anywhere…so our kids/friends/parents can be monitored while they are in another room, in another place, at a play date, sleepover, sports activity, or even at school. We are closer than ever to the prospect of a safer, more effective, less burdensome life with type 1 diabetes for millions of people and WE ARE NOT WAITING!
https://www.facebook.com/groups/cgminthecloud/
Children and Young People with Type 1 Diabetes have a Right to DLA & PIP
A Group for Parents of Children up to aged 18 with Type 1 Diabetes, and for Young People with Type 1 Diabetes and/or their parents to mutually offer advice and support to each other in matters concerning their Disability Living Allowance/PIP claim, reconsideration, appeal or tribunal.
https://www.facebook.com/groups/arighttodla
CWD UK Dads (Children with Diabetes UK Dads)
This was set up so us dads could talk in private about whatever we want be it Diabetes related, sports, or any other issues you want another mans point of view on, what goes on in this group stays within the group!
https://www.facebook.com/groups/320173301367511/
UK CWD AG (UK Children with Diabetes Advocacy Group)
This group is purely for parents / carers of children with diabetes.
Having a child diagnosed with type 1 diabetes can be a frightening experience. We already have an established and recognised email support & discussion group which has been running since 2002 which you can find on our website www.childrenwithdiabetesuk.org. By joining our facebook group and/or CWD email support and discussion group, you will be put you in touch with other families who are raising children with diabetes. Both forums are open to anybody who wants to discuss all of the personal and scientific aspects of this condition and how it affects their family’s lives.
The aims of this facebook group is to help to offer mutual support and advice to all families of children and young people with type 1 diabetes. UK CWD AG are a patient led, not for profit organisation, who work with other Diabetes organisations such as Diabetes UK, JDRF, DRWF. We aim to raise awareness of the issues regarding all aspects of T1D.
https://www.facebook.com/groups/UKCWD/
Dexcom UK G5 Cgm Users
This group is for parents and adults with Type 1 diabetes and any conditions necessitating the use of a CGM, who are either already using or have an interest in the Dexcom G5 CGM.
Group is for UK residents only.
https://www.facebook.com/groups/450139108525410/
Diabetes UK Support Forum
The Diabetes UK Support Forum is for everyone with diabetes, whatever type it may be, and for their families and carers.
One of the best ways to gain new knowledge and information about diabetes is through sharing the experiences of other people with the condition. You may not feel that you need advice, but you may be in a position to give it, and to help others.
Although anyone can read the conversations on the Support Forum, if you want to ask or reply to questions, or offer advice of your own, you’ll need to join. It’s free to sign up, and you don’t need to use your real name if you don’t want to.
https://forum.diabetes.org.uk/boards/?_ga=2.99283994.549920804.1521491564-1072870681.1521147926
Libre Geeks
Taking data live from a medical device, the Freestyle Libre..no solution for the faint hearted.
https://www.facebook.com/groups/libregeeks/
Looped UK
Looped UK is the home of DIY Closed Looping for UK users. It is affiliated with the main Looped group and allows those who are building loops in the UK to catch up on a local level.
https://www.facebook.com/groups/LoopedUK/
Medtronic 640G, 630G, 670G Insulin Pump System support group, ideas & tips
This is a group for anyone on a Medtronic 640G/630G/670G system whether parents of children/teens on the pump or teens/adults on the pump themselves. This group is to swap tips, thoughts and to support each other.
https://www.facebook.com/groups/640gsystem/
Nightscout UK
This is a UK based group, as a support for those wanting to source consumables and set up nightscout. It is not a replacement for support from the original CGM in the cloud group, or nightscout forum but an addition to the group. A place to find UK OTG mobiles, mobile networks, data plans and cables that work in this country.
https://www.facebook.com/groups/nightscoutUK/
Regional Paediatric Diabetes Network Parents Groups
These groups have been set up to work alongside the other networks to empower parents, children and young people with diabetes to work in partnership with healthcare professionals to establish a pathway of care that enhances and improves their health and control of diabetes.
East of England Paediatric Diabetes Network Parents Group
https://www.facebook.com/groups/eofediabetesnetwork/
East Midlands Paediatric Diabetes Network Parents Group
https://www.facebook.com/groups/midlandseast/
North East and North Cumbria Paediatric Diabetes Network Parents Group
https://www.facebook.com/groups/northeastandnorthcumbrianetwork/
North West Paediatric Diabetes Network Parents Group
https://www.facebook.com/groups/northwestnetwork/
South West Paediatric Diabetes Network Parents Group
https://www.facebook.com/groups/southwestnetwork/
Thames Valley & Wessex Paediatric Diabetes Network Parents Group
https://www.facebook.com/groups/thamesvalleywessexnetwork/
West Midlands Paediatric Diabetes Network Parents Group
https://www.facebook.com/groups/westmidlandsnetwork/
Yorkshire and the Humber Paediatric Diabetes Network Parents Group
https://www.facebook.com/groups/yorkshireandhumbernetwork/
Wales Paediatric Diabetes Network Parents Group
https://www.facebook.com/groups/walesnetwork/
T1 Resources
Improving the lives of people living with type 1 diabetes by introducing them to the wide range of resources and support that are available online.
Living with type 1 diabetes isn’t easy and it can be quite a lonely and isolating experience. T1resources.uk grew out of a conversation between people with diabetes and healthcare professionals who had been using online resources and communities as part of their type 1 toolkit for a number of years. People who had seen what a positive effect this information and support can have in improving self-management and generally making type 1 diabetes a little bit easier to live with.
T1resources.uk was designed as a set of signposts. Not comprehensive by any means, but a useful starting point for anyone wanting to begin to explore social media and online information to help them manage type 1 diabetes. We believe that for everyone, there is a unique, happy corner of the internet with a select number of resources, channels and communities from among the bewildering array available.
https://www.t1resources.uk/home/
Vision Center, (USA), Eye Health
Useful information on how Type 1 Diabetes can affect eyes.
People with Type 1 diabetes are at an increased risk for eye complications and peripheral neuropathy.
https://www.visioncenter.org/blog/diabetic-eye-exam/
Diabetic Diseases of the Eye
Diabetic retinopathy, one of the biggest health concerns for people with Type 1 diabetes, causes damage to retinal blood vessels in the eyes. There are usually no symptoms in the early stages of diabetic retinopathy, but unmanaged it can eventually lead to blindness.
https://www.visioncenter.org/conditions/diabetic-diseases/